Meet the crew

Ethan

Heart failure at a young age meant a stressful start to life for Ethan and his family. Today, his "contagious laugh" is all that matters to granddad Bobby, who says the creative youngster brings joy to everyone around him

"If you ever get the chance to be a grandparent to a Down’s syndrome child, grab it with both hands"

My name is Bobby. I am Ethan’s granddad. He came into my life on January 13, 2003. He was, and still is, a beautiful child. When born, he had a very large hole in his heart and he kept going into heart failure.

This was a very stressful time for all. Thankfully, because of the prayers from friends of all religions and the hospital staff, he made a complete recovery.

I am at a loss for words to explain the love Ethan has for me and his nanny and us for him. He has the most contagious laugh, he gets up to all the mischief he can, he loves listening to music and playing with water, balls and his “babies”, especially frog (we need a new green frog with dangly legs)!

Ethan has a very inventive mind and we build huts with sheets and clothes pegs among other things. Sometimes, due to frustration or panic attacks, he gets very distressed, but hugging and singing to him usually calms him down.

If you ever get the chance to be a grandparent to a Down’s syndrome child, grab it with both hands. The joy and love the child will bring into your heart and home is unbelievable.



Ethan's Photos


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